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05/17/12

Permalink 03:05:00 pm, by Tom Donohue Email , 36 words   English (US) latin1
Categories: Personal

Tom Donohue on the The Michelangelo Signorile Show on SiriusXM Satellite Radio

Link: http://www.google.com/hostednews/ap/article/ALeqM5if_vskw6LuoIUzJ4DlTnem6kY30A?docId=313281197da643d5be0fc62d02ef1e77


Tom speaks with Editor-At-Large for Huffington Post Gay Voices, Mike Signorile about the over-the-counter HIV test that was recently approved by the Blood Product Advisory Committee of the FDA

Click here to listen to the interview

05/12/12

Permalink 12:53:00 pm, by Tom Donohue Email , 104 words   English (US) latin1
Categories: Personal, Who's Positive Press Releases

Who's Positive Releases Raw Data of it's Over-The-Counter HIV Testing Survey

Link: http://www.whospositive.org/OTCSurvey

In order to be as transparent as possible, Who's Positive releases the raw data from it's over-the-counter HIV Test.

Please go to http://www.whospositive.org/OTCSurvey there you will find:

FDA Remarks.pdf
Remarks prepared by Tom Donohue, Founding Director for Who's Positive to be presented before the Blood Products Advisory Committee on May 15th.

Raw Data.pdf
This is all of the raw data from our survey. Only information we retained is personal contact information which identifies an individual persons name and contact information as well their HIV-status should they have shared that information.

Whos Positive OTC Press Release.pdf
Who's Positive's press release with results of it's OTC HIV Test Survey

05/09/12

Permalink 04:02:00 am, by Tom Donohue Email , 306 words   English (US) latin1
Categories: Who's Positive Press Releases

Who's Positive survey shows overwhelming support for Over-the Counter HIV Testing especially from those already infected by HIV/AIDS and those under the age of 30

Link: http://newswise.com/articles/survey-reveals-support-for-over-the-counter-hiv-testing

Survey Reveals Support for Over-the Counter HIV Testing

 

Newswise — WASHINGTON, D.C., May 11, 2012 -- Who's Positive, a national HIV awareness organization, today announced the results of a year-long online survey measuring support for over-the counter (OTC) HIV testing. The organization will present these results at the upcoming U.S. Food and Drug Administration (FDA) Blood Products Advisory Committee (BPAC) on May 15, 2012.

 Overall, the survey findings demonstrate support for rapid OTC testing - particularly from the HIV community - with approximately half of the respondents identified as people living with HIV/AIDS. 

The survey gathered responses from 1,569 participants, 74% of which said that they would support an OTC rapid, oral swab HIV test that could be purchased in a retail store, if approved by the FDA. Other key findings include: 

* 66% of the respondents who identify as a HIV-positive consumer support an OTC HIV test
* 80% of those aged to 30 support an OTC HIV test 

* A majority or nearly 52% of those who identified as a paid member of an HIV/AIDS organization support an OTC HIV test

* 47% of those who identify as one who performs HIV testing support an HIV OTC test

“Our survey demonstrates widespread support for additional testing options, especially among younger generations and those who are already living with HIV,” said Tom Donohue, Founding Director of Who’s Positive. "Over-the-counter testing has the potential to break down barriers and empower people who have never been tested before to learn their HIV status and, if positive, find the care and support they need."

About Who’s Positive

Who's Positive is committed to raising the awareness of HIV and its consequences. Our organization foregrounds the reality of living with HIV through the first-hand accounts of those coping with the disease. Who's Positive strives to remind the public that this is a virus with no cure. Through the stories of those living with HIV, Who's Positive hopes to reduce the transmission of HIV among teens and young adults - a population with one of the fastest growing infection rates. 
###

Contact:

Tom Donohue (434) 260-1330
www.whospositive.org

 
Permalink 01:18:00 am, by Tom Donohue Email , 158 words   English (US) latin1
Categories: Personal

Video: Hershey Protest at Sweet and Snack Expo May 8

Link: http://www.whospositive.org/news/news.php?newsid=159

This literally gave me chills when I watched it.  

We need to continue to bring light to this issue until Milton Hershey School allows admission to this young honor roll student who they refuse admission to based on his HIV-status.  See link above for addtional information.

I send my personal thanks to each member of this team who brought attention to this issue.

Who's Positive continues to be proud of supporting this boycott.

“Maybe Hershey should boast that they are true to its ideals and remains focused on helping HIV-negative children” says Tom Donohue, HIV-positive, Pennsylvania native & Founding Director for Who’s Positive. “Milton Hershey School denying access to an HIV-positive student in 2012 is the 20th century story of Ryan White” Donohue continues “I’m furious! This is a thirteen year old boy who simply wants the same good education in a good scholarly school as the other perceived HIV-negative students”

We also reccommend you looking at: http://www.poz.com/articles/Hershey_HIV_TimesSqProtest_401_22085.shtml

Visit http://www.endhivstigma.org

 b2evolution

04/26/12

Permalink 11:55:00 am, by Tom Donohue Email , 695 words   English (US) latin1
Categories: Personal

Why the FDA Should Say "Yes" on a Rapid Over-The-Counter HIV Test

Link: http://www.whospositive.org

In order to become the generation which ends AIDS we must progressively move forward using new technology to get people tested for HIV.  We must find new ways to empower people to know their HIV status.

It's important to note that an OTC oral/rapid home test is not replacing the conventional way we currently test.  It is an additional resource an additional option .  I believe people should be able to learn their HIV status the way they want to learn it.   I know from traveling and listening to feedback that many people - (including a population of people who have chosen not to know their status using conventional methods) find it intrusive to communicate sexual  behaviors to complete strangers or to anyone at all- we know that this prevents people from going and learning their status - they simply do not want to share their sexual history with another person in their community.  As important as this service can be - we must acknowledge its true, a certain population don't want to get tested that way.  Stigma continues to prohibit folks from being seen going into a clinic.  An OTC test puts the power in the hands of the person wanting to know their status to decide who they tell, how they tell it and where they want to learn their fate.  No one ever said that learning your HIV status is easy.  It's not.  As an HIV-positive individual for nine years, I know firsthand how difficult it can be.

Everyone acknowledges challenges with this type of test - but should these challenges prohibit a population of people who want to know their status from knowing?  I have been very open with the manufacture as well as the FDA about concerns with counseling and linkage to care and partner notification to name a few.  I know many think everyone should have the counseling in person - but why limit our options if someone wants to know what their status is? There will be 24 hour 7 day a week trained professionals available via phone.  This means that the person never has to be identified if they choose not to be - but they will get the support and the linkage to care they need 24 hours a day 7 days a week (I might add hours in which many clinics are not able to offer).  There will be tools for linkage to care and partner notification.  Now a day we have to consider using new tools and technology to help us end this epidemic.  We have to be willing to be open minded and willing to accept new tools in order to make a bigger impact.  (Remember much of this information will be released at the Blood borne Pathogens Committee (BPAC) meeting of the FDA on May 15th.

I have been following this project for 7 years, I have heard and talked to thousands of folks about this.  I personally feel,  now is the time to move forward with OTC - we can't wait any longer we have new tools and if we want to become the generation which ends AIDS, we can't withhold the tools and technology from a generation crying out to wanting to use them.

Together, I believe we can be the generation which ends AIDS.

Tom Donohue
Founding Director, Who's Positive 

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 On May 9th or 10th Who's Positive will release the results of a year long survey which asked  If approved by the FDA - Would you support a mouth swab, rapid, over the counter HIV test which could be purchased at a retail store?

If you would like to see the results of this survey or if you would like to follow our work please provide us with your information below.  Additionally, you can follow us at http://www.twitter.com/whospositive or on Facebook at http://www.facebook.com/whospositive

Tell us a little about yourself to follow Who's Positive and our work.  Who's Positive will not in anyway distribute your information, nor do we send many emails.
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